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Source
Organizations on this list were compiled from the NDIC Directory of Diabetes Organizations, January 2007.
National diabetes support organizations
Professional and voluntary diabetes organizations
American Association of Clinical Endocrinologists (AACE)
1000 Riverside Avenue, Suite 200
Jacksonville, FL 32202
Phone: 904–353–7878
Fax: 904–353–8185
Internet: www.aace.com
Mission: To provide an avenue for the study of the scientific, social, political, and economic aspects of endocrinology consistent with maintaining the highest levels of patient care and the highest standards of medical practice. AACE is an international organization representing physicians devoted to enhancing the field of clinical endocrinology.
Materials: AACE publishes a peer-reviewed scientific journal, Endocrine Practice. The organization also publishes The First Messenger newsletter and other timely publications, such as practice guidelines, to keep members abreast of scientific developments and news.
American Association of Diabetes Educators (AADE)
100 West Monroe, Suite 400
Chicago, IL 60603–1901
Phone: 1–800–338–3633
or 312–424–2426
Diabetes Educator Access Line: 1–800–TEAMUP4
(1–800–832–6874)
Fax: 312–424–2427
Email: aade@aadenet.org
Internet: www.diabeteseducator.org or www.aadenet.org
Mission: AADE is a multi-disciplinary organization of more than 10,000 health rofessionals dedicated to advocating quality diabetes education and care.
Materials: AADE publishes The Diabetes Educator, a bimonthly journal for multidisciplinary members of the diabetes health care team. The journal publishes the latest diabetes education research and provides valuable teaching tools and techniques. AADE also produces the most comprehensive diabetes education resource, A Core Curriculum for Diabetes Education, now in its third edition. AADE members receive AADE News, providing association-related news and practice information, nine times per year. Call AADE for a complete listing of all educational products, including publications, videotapes, and patient materials, available through the association.
American Diabetes Association (ADA)
1701 North Beauregard Street
Alexandria, VA 22311
Phone: 1–800–DIABETES
(1–800–342–2383) (National Call Center)
703–549–1500 (National Service
Center)
1–800–232–3472 (professional member department only)
Fax:
703–549–6995
Email: askada@diabetes.org
Professional
Membership Email: membership@diabetes.org
Internet:
www.diabetes.org
Mission: To prevent and cure diabetes and to improve the lives of everyone affected by diabetes.
Materials: The American Diabetes Association publishes many books and resources for health professionals and people with diabetes. In addition, it publishes Diabetes Forecast, a monthly magazine for people with diabetes, and Diabetes, Diabetes Care, and Diabetes Spectrum, which are professional journals. For further details and ordering information on ADA’s publications, contact the American Diabetes Association, Order Fulfillment Dept., P.O. Box 930850, Atlanta, GA 31193–0850, 1–800–232–6733; or see store.diabetes.org/ on the Internet.
National Call Center
(Part of the American Diabetes
Association)
Our trained staff at 1–800–DIABETES (1–800–342–2383) is dedicated to answering thousands of calls and e-mails a day from people with diabetes, as well as their families, friends and health care professionals. To be a source the public can count on, the National Call Center is available Monday through Friday from 8:30 a.m. to 8:00 p.m. Eastern time to provide support, encouragement, and education on diabetes management through a variety of free pamphlets and brochures.
American Dietetic Association (ADA)
120 South Riverside Plaza, Suite 2000
Chicago, IL 60606–6995
Phone: 1–800–877–1600 or 1–800–877–0877
800–877–1600, ext. 5000 (referral to registered dieticians)
Fax: 312–899–4899
Email: knowledge@eatright.org
Internet: www.eatright.org
Mission: To promote optimal nutrition and
well-being for all people by advocating for its members.
Materials: The American Dietetic Association publishes a monthly professional journal, The Journal of the American Dietetic Association, and a monthly newsletter, ADA Courier. In addition, it publishes many books and other resources for consumers and professionals. Subgroups of the ADA include:
Diabetes Care and Education Dietetic Practice Group (DCE)
(a subgroup of the American Dietetic Association)
For information, contact the American Dietetic Association using the above information.Mission: To promote quality nutrition care and education. As leaders in the diabetes community, DCE members make positive contributions to people with diabetes and their families, the DCE membership, and other professional organizations and industry.
Materials: Professional and consumer publications are created by DCE in conjunction with both the American Dietetic Association and the American Diabetes Association. Materials can be ordered through either association. A bimonthly newsletter is published for members.
Consumer Nutrition Hotline
(part of the American Dietetic Association)Phone: 1–800–877–1600
Internet: www.eatright.org
Mission: A toll-free consumer nutrition hotline that provides a referral service to registered dietitians.
American Urological Association Foundation (AUAF)
1000 Corporate Boulevard
Linthicum, MD 21090
Phone: 410–689–3700 or 1–866–746–4282 (toll-free U.S. only)
Fax: 410–689–3800
Email: auafoundation@auafoundation.org
Internet: www.auafoundation.org or www.urologyhealth.org
Mission: To provide research grants, patient and public education, Government relations, and patient support group activities.
Materials: AUAF publishes an informational brochure about the organization; Family Urology, a quarterly newsletter; and several patient education brochures.
American Podiatric Medical Association (APMA)
9312 Old Georgetown Road
Bethesda, MD 20814–1621
Phone: 301–571–9200
Fax: 301–530–2752
Internet: www.apma.org
APMA Foot Care Information Center
Phone: 1–800–FOOT–CARE (1–800–366–8227)
Mission: To serve the professional needs and promote the standards and ethics of doctors of podiatric medicine and their services to the public.
Materials: APMA publishes a monthly magazine, APMA News; a monthly journal, Journal of the American Podiatric Medical Association; and a diabetes-specific booklet, Your Podiatric Physician Talks About Diabetes, along with many other brochures on various foot health topics.
Diabetes Action Research and Education Foundation
426 C Street, NE
Washington, DC 20002
Phone: 202–333–4520
Fax: 202–558–5240
Email: info@diabetesaction.org
Internet: www.diabetesaction.org
Mission: To support and promote education and
scientific research to enhance the quality of life for everyone affected by
diabetes.
Materials: The foundation publishes the booklet Managing Your Diabetes: Basics and Beyond.
Diabetes Exercise and Sports Association (DESA)
8001 Montcastle Drive
Nashville, TN 37221
Phone: 1–800–898–4322
Fax: 615–673–2077
Email: desa@diabetes-exercise.org
Internet: www.diabetes-exercise.org
Mission: To enhance the quality of life for people
with diabetes through exercise.
Materials: The Challenge is DESA’s quarterly newsletter. DESA also provides pamphlets on diabetes and exercise.
Endocrine Society
8401 Connecticut Avenue, Suite 900
Chevy Chase, MD 20815–5817
Phone: 301–941–0200 or 1–888–363–6274
Fax: 301–941–0259
Email: pcorrea@endo-society.org
Internet: www.endo-society.org
Mission: To promote excellence in research,
education, and the clinical practice of endocrinology; foster a greater
understanding of endocrinology among the general public and practitioners of
complementary medical disciplines; and promote the interests of all
endocrinologists at the national scientific research and health policy levels of
Government.
Materials: The Endocrine Society publishes four professional journals: Endocrinology, The Journal of Clinical Endocrinology and Metabolism, Endocrine Reviews, and Molecular Endocrinology. Another publication, The Clinical Endocrinology Update Syllabus, provides practicing endocrinologists with a review of the diagnosis and management of all major components of contemporary endocrinology.
Juvenile Diabetes Research Foundation International (JDRF)
120 Wall Street, 19th Floor
New York, NY 10005–4001
Phone: 1–800–533–2873 or 212–785–9500
Fax: 212–785–9595
Email: info@jdf.org
Internet: www.jdf.org
Mission: To support and fund research to find a cure for diabetes and its complications. The Juvenile Diabetes Research Foundation International (JDRF) is a nonprofit, voluntary health agency, and the world's leading charitable funder of research to find a cure for diabetes.
Materials: JDRF publishes the quarterly magazines Countdown and Countdown for Kids, as well as a series of patient education brochures about type 1 and type 2 diabetes and also a research e-newsletter to provide the latest information about research on type 1 diabetes and its complications.
Insulin Pumpers
Founder: Michael Robinton
558 Valley Way
Milpitas, CA 95035
Phone: 408 942-7300
Fax: 408 942-7321
Email: info@isletsofhope.com
Internet: www.insulin-pumpers.org.uk
www.insulin-pumpers.ca
www.insulin-pumpers.org
Mission: Insulin Pumpers was formed in September 1997 by Michael Robinton as a voluntary organization providing a support forum on the internet for pump users. His daughter had recently started using a pump. It is now handled by a team of 50 volunteer writers, web developers, mail administrators, chat organizers and medical advisory board members.
Materials: They do not provide printed material, however, the offer extensive online resources about insulin pumping and diabetes, and feature a medical board and forums rto ask questions.
Islets of Hope
Founder: Lahle A. Wolfe
2323 Meadowglen Way
Upland, CA 91784-8610
Phone: 909-200-8688
Email: info@isletsofhope.com
Internet: www.isletsofhope.com
Mission: IOH is a volunteer-driven, diabetes consumer advocacy group that offers comprehensive diabetes information and support, free legal advice, and exhaustive legal and insurance information. IOH was founded to fund nonprofit diabetes assistance organizations. IOH assists in resolution of product fraud and discrimination at school and in the work place.
Materials: Islets of Hope offers a free, online monthly newsletter, and multiple (downloadable), free publications on a variety of diabetics topics with an emphasis on legal rights and assistance programs for diabetics.
National Certification Board for Diabetes Educators (NCBDE)
330 East Algonquin Road, Suite 4
Arlington Heights, IL 60005
Phone: 847–228–9795
Phone requests for exam applications: 913–541–0400
Fax: 847–228–8469
Email: info@ncbde.org
Internet: www.ncbde.org
Mission: To promote excellence in the field of
diabetes education through the development, maintenance, and protection of the
Certified Diabetes Educator (CDE) credential and the certification process.
Materials: NCBDE publishes a brochure that contains information about eligibility requirements and the certification examination.
National Glycohemoglobin Standardization Program (NGSP)
Randie R. Little, Ph.D., Network Coordinator
Department of Child Health
University of Missouri Hospital & Clinics
1 Hospital Drive N712
Columbia, MO 65212
Phone: 573–882–6882
Fax: 573–884–8823
Email: ngsp@missouri.edu
Internet: http://web.missouri.edu/~diabetes/ngsp.html
Mission: To standardize glycated hemoglobin test
results so that clinical laboratory results are comparable to those reported in
the Diabetes Control and Complications Trial (DCCT), where relationships to mean
blood glucose and risk for vascular complications have been established.
National Kidney Foundation, Inc. (NKF)
30 East 33rd Street
New York, NY 10016
Phone: 1–800–622–9010 or 212–889–2210
Fax: 212–689–9261
Email: info@kidney.org
Internet: www.kidney.org
Mission: To prevent kidney and urinary tract
diseases, improve the health and well-being of individuals and families affected
by these diseases, and increase the availability of all organs for
transplantation. Through its 51 affiliates nationwide, NKF conducts programs in
research, professional education, patient and community services, public
education, and donation. The work of NKF, a major voluntary health organization,
is funded primarily by public donations.
Materials: NKF has several publications including American Journal of Kidney Diseases, Journal of Renal Nutrition, Advances in Renal Replacement Therapy, Journal of Nephrology Social Work, Renalink, NKF MD, NKF Family Focus, Transplant Chronicles, and For Those Who Give and Grieve. Additional patient and public education materials are also available.
Pedorthic Footwear Association (PFA)
2025 M Street, NW, Suite 800
Washington, DC 20036
Phone: 202–367–1145 or 1–800–673–8447
Fax: 202–367–2145
Internet: www.pedorthics.org
Mission: To increase knowledge and understanding of
pedorthics and its practice, encourage development of new pedorthic tools and
techniques, and foster the professional development of pedorthic
practitioners.
Materials: PFA publishes the bimonthly magazine Current Pedorthics, formerly called Pedoscope; the brochures Pedorthics: Foot Care Through Proper Footwear and Diabetes & Pedorthics: Conservative Foot Care; reference guides; and manuals.