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Source
Organizations on this list were compiled from the NDIC Directory of Diabetes Organizations, January 2007.
National diabetes support organizations
Government diabetes support organizations
This directory lists Government agencies that provide diabetes information and resources. Some of these diabetes organizations offer educational materials and support to people with diabetes and the general public, while others serve primarily health care professionals.
Department of Health and Human Services
National Institutes of Health (NIH)
National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)Internet: www.niddk.nih.gov
The National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) is the Government's lead agency for diabetes research. The NIDDK operates three information clearinghouses of potential interest to people seeking diabetes information and funds six Diabetes Research and Training Centers and eight Diabetes Endocrinology Research Centers.
National Diabetes Information Clearinghouse (NDIC)
1 Information Way
Bethesda, MD 20892–3560
Phone: 1–800–860–8747
Fax: 703–738–4929
Email: ndic@info.niddk.nih.gov
Internet: www.diabetes.niddk.nih.gov
Mission: To serve as a diabetes information, educational, and referral resource for health professionals and the public. NDIC is a service of the NIDDK.
Materials: Diabetes education materials are available free or at little cost. Literature searches on myriad subjects related to diabetes are provided. NDIC publishes Diabetes Dateline, a quarterly newsletter.
National Digestive Diseases Information Clearinghouse (NDDIC)
2 Information Way
Bethesda, MD 20892–3570
Phone: 1–800–891–5389
Fax: 703–738–4929
Email: nddic@info.niddk.nih.gov
Internet: www.digestive.niddk.nih.gov
Mission: To serve as a digestive disease informational, educational, and referral resource for health professionals and the public. NDDIC is a service of the NIDDK.
Materials: Educational materials about digestive diseases, available free or at little cost. Literature searches on a myriad of subjects related to digestive diseases are also provided. NDDIC publishes Digestive Diseases News, a quarterly newsletter.
National Kidney and Urologic Diseases Information Clearinghouse (NKUDIC)
3 Information Way
Bethesda, MD 20892–3580
Phone: 1–800–891–5390
Fax: 703–738–4929
Email: nkudic@info.niddk.nih.gov
Internet: www.kidney.niddk.nih.gov
Mission: To serve as a kidney and urologic disease informational, educational, and referral resource for health professionals and the public. NKUDIC is a service of NIDDK.
Materials: Educational materials on kidney and urologic diseases are available free or at little cost. Literature searches on a myriad of subjects related to kidney and urologic diseases are provided. NKUDIC publishes Kidney Disease Research Updates and Urologic Disease Research Updates, quarterly newsletters.
National Diabetes Education Program (NDEP)
1 Diabetes Way
Bethesda, MD 20892–3560
Phone: 1–800–438–5383
Fax: 703–738–4929
Email: ndep@mail.nih.gov
Internet: www.ndep.nih.gov
Mission: To improve the treatment and outcomes for people with diabetes, to promote early diagnosis, and to prevent or delay the onset of diabetes.
Materials: Diabetes education materials are available free or at little cost.
National Kidney Disease Education Program (NKDEP)
3 Kidney Information Way
Bethesda, MD 20892
Phone: 1–866–4–KIDNEY or 866–454–3639
Fax: 301–402–8182
Email: nkdep@info.niddk.nih.gov
Internet: www.nkdep.nih.gov
Mission: NKDEP is an initiative of the National Institutes of Health, designed to reduce the morbidity and mortality caused by kidney disease and its complications.
NKDEP aims to raise awareness of the seriousness of kidney disease, the importance of testing those at high risk (those with diabetes, high blood pressure, or a family history of kidney failure), and the availability of treatment to prevent or slow kidney failure.
Materials: Educational materials about kidney disease, available free or at little cost.
Weight-control Information Network (WIN)
1 WIN Way
Bethesda, MD 20892–3665
Phone: 1–877–946–4627 or 202–828–1025
Fax: 202–828–1028
Email: win@info.niddk.nih.gov
Internet: win.niddk.nih.gov
Mission: To address the health information needs of individuals through the production and dissemination of educational materials. In addition, WIN is developing communication strategies for a pilot program to encourage at-risk individuals to achieve and maintain a healthy weight by making changes in their lifestyle.
Materials: Fact sheets, brochures, reprints, consensus statements, and literature searches on weight control, obesity, and weight-related nutritional disorders. WIN’s semiannual newsletter, WIN Notes, provides health professionals with the latest research findings and progress in the WIN program.
National Eye Institute (NEI)
2020 Vision Place
Bethesda, MD 20892–3655
Phone: 1–800–869–2020 (for
health professionals only)
Fax: 301–402–1065
Email: 2020@nei.nih.gov
Internet: www.nei.nih.gov
Mission: To promote public and professional awareness of the importance of early diagnosis and treatment of diabetic eye disease. NEHEP is a partnership with various public and private organizations that plan and implement eye health education programs targeted to a variety of high-risk audiences.
Materials: NEI produces patient and professional education materials related to diabetic eye disease and its treatment, including literature for patients, guides for health professionals, and education kits for community health workers and pharmacists. The following titles focus on diabetic eye disease: Educating People with Diabetes (kit), Information Kit for Pharmacists, and Ojo con su Visión (Watch Out for Your Vision) (in Spanish).
National Heart, Lung, and Blood Institute (NHLBI) Information Center
Attn: Web Site
P.O. Box 30105
Bethesda, MD 20824–0105
Phone: 301–592–8573
TTY: 240–629–3255
Fax: 240–629–3246
Email: NHLBIinfo@nhlbi.nih.gov
Internet: www.nhlbi.nih.gov
Mission: To provide information and respond to inquiries related to the prevention and treatment of heart, lung, blood, and
sleep disorders.
Materials: Patient education and professional materials are available on numerous topics, including cholesterol, high blood pressure, asthma, blood disease, heart disease, heart attack, exercise, obesity, lung disease, and sleep disorders. Treatment guidelines for health professionals are available on cholesterol, high blood pressure, obesity, and asthma. Serial publications Heart Memo, which provides program updates about cholesterol, high blood pressure, and heart attack, and Asthma Memo, which describes the activities of the National Asthma Education and Prevention Program, are available only online.
National Institute of Dental and Craniofacial Research/
National Oral
Health Information Clearinghouse (NOHIC)
1 NOHIC Way
Bethesda, MD 20892–3500
Phone: 301–402–7364
Fax: 301–480–4098
Email: nidcrinfo@mail.nih.gov
Internet: www.nidcr.nih.gov
Mission: To serve as a resource for patients, health professionals, and the public who seek information about general oral health topics and the oral health of special care patients: people with genetic or systemic disorders that compromise oral health, people whose medical treatment causes oral problems, and people with mental or physical disabilities that make dental hygiene difficult. A service of the National Institute of Dental and Craniofacial Research, NOHIC gathers and disseminates information from many sources, including voluntary health organizations, educational institutions, Government agencies, and industry.
Materials: NOHIC provides a variety of services to help patients and professionals obtain information including patient and professional educational materials.
Centers for Disease Control and Prevention (CDC)
National Center for Chronic Disease Prevention and Health Promotion
Division of Diabetes Translation
Mail Stop K–10
4770 Buford Highway, NE
Atlanta, GA 30341–3717
Phone: 770–448–5000 or 1–800–CDC–INFO (1–800–232–4636)
TTY: 1–888–232–6348
Fax: 770–488–5966
Email: diabetes@cdc.gov
Internet: www.cdc.gov/diabetes
Mission: To eliminate the preventable burden of
diabetes through leadership, research, programs, and policies that translate
science into practice.
Materials: CDC distributes several publications including a patient guide for people with diabetes (available in English and Spanish) and the eight-page National Diabetes Fact Sheet: National Estimates and General Information on Diabetes in the United States. State-based diabetes prevention and control programs develop and maintain local programs and produce materials on diabetes for the general public and health professionals. Internet home page includes fact sheets, statistics, publications, and information about state diabetes prevention and control programs.
Indian Health Service (IHS)
Indian Health Service National Diabetes Program
5300 Homestead Road, NE
Albuquerque, NM 87110
Phone: 505–248–4182 or 505–248–4236
Fax: 505–248–4188
Email: diabetesprogram@mail.ihs.gov
Internet: www.ihs.gov/medicalprograms/diabetes/index.asp
Mission: To develop, document, and sustain a health
effort to prevent and control diabetes in American Indian and Alaska Native
communities.
Materials: IHS makes many diabetes resources available, including the Diabetes Curriculum Packet, nutrition education materials, general diabetes information, professional resources, training programs, posters, audiovisual materials, and other patient education materials. Educational materials are directed toward American Indian and Alaska Native populations, and some materials are available at a lower reading level. Materials can be obtained upon request from the IHS National Diabetes Office.
Office of Minority Health Resource Center (OMH-RC)
P.O. Box 37337
Washington, DC 20013–7337
Phone: 1–800–444–6472
Fax: 301–251–2160
Email: info@omhrc.gov
Internet: www.omhrc.gov
Mission: To improve the health of racial and ethnic populations through the development of health policies and programs. OMH-RC is the largest resource and referral service on minority health in the Nation.
Materials: OMH-RC offers information, publications, mailing lists, database searches, referrals, and more for African American, Asian, Hispanic/Latino, American Indian/Alaska Native, and Pacific Islander populations. OMH-RC publishes the newsletters Closing the Gap and HIV Impact.
Department of Veterans Affairs
Veterans Health Administration (VHA)
Program Chief, Diabetes
Veterans Health Administration
810 Vermont Avenue, NW
Washington, DC 20420
Phone: 202–273–5400
Fax: 202–273–9142
Internet: www1.va.gov/diabetes/#veterans
Mission: To decrease the prevalence of adverse
health outcomes in veterans with diabetes by ensuring that each patient at each
facility has access to preventive and treatment programs that meet national
standards of care.
Materials: The VHA Diabetes Clinical Practice Guidelines is a comprehensive, evidence-based document that incorporates information from several existing, national consensus, evidence-based guidelines into a format that maximally facilitates clinical decisionmaking. An algorithmic format was chosen because of evidence that such a format improves data collection and diagnostic and therapeutics decision making and changes patterns of resource use. Guidelines were developed in six major subject areas, including glycemic control, foot care, eye care, hypertension, lipids, and renal disease. A computer version of the algorithm is under discussion.