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Diabetes Support

Islets of Hope diabetes support and discussion lists
Frequently Asked Questions (FAQs) & List Rules and Netiquette

Last Updated:  December 2005

Also, see Website Disclaimer and our Privacy Statement


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DISCLAIMER
Our  website and discussion lists are intended for very general medical information only.  Messages posted by list members do not necessarily reflect the opinions, position, or policies of  IOH.   

IOH doe NOT provide medical, health or nutritional advice, nor does IOH engage in the endorsement of any specific product, company or practitioner unless otherwise specifically stated.  Material found on our site, or on any of our e-mail discussion lists or forums, is not intended for, nor should be used for, self- diagnosis or self-treatment.

It is important to remember that others posting on our support lists are not medical professionals and are not qualified to offer any form of medical advice.  Even if a member reports to be a medical professional, IOH strongly recommends you do not rely on the word of the poster -- anyone can claim to be a doctor, nurse, diabetologist, etc.

IOH strongly recommends you seek the advice of a competent medical professional for diagnosis and treatment options or before making changes to your diabetes care plan.


WHO CAN VIEW YOUR POSTS?
Lists and list archives are closed to only those on that particular list but anyone can join our lists. Therefore, it is important to be aware that you should consider any post you send to one of our lists accessible by anyone with Internet access. Please use extreme caution when posting identifying information!

NOTICE OF PRIVACY
The IOH does not collect data from, maintain profiles for, or sell or give out email addresses of our list members.  Read complete Privacy Statement.

LIST ADMINISTRATOR
Currently, the list administrator for all lists is Lahle@isletsofhope.com.

OUR LISTS ARE POSITIVE
IOH lists are intended for positive support and information exchange, not as a debate forum for ideas, belief systems, opinions, treatment options, or for advertising without the express permission from the IOH. Keep it friendly and upbeat. You can however, complain all you want on the Diabetes Stinks list without restriction – this is a full vent list (reader beware) as long as the vent is directed towards diabetes and not a person, health professional, profession, product, institution, or organization. Vent as heatedly as you want, but all replies to others must be friendly in nature  -- flame diabetes but not other people!

YOUR LIST’S PUBLIC INFORMATION PAGE
Throughout this document you will be referred to your lists public information site.  Once you are on the list's public information page, simply find your list’s name and click on the link that will take you directly to your list’s public information page.  The link to all information pages is provided at the top of this document.

                

Page Index

1.0   BASIC LIST INFORMATION
1.1   Who owns and runs the lists?
1.2   Who can join and what are my posting privileges?
1.3   How can I help offset the operating costs of your lists?
1.4   How do I subscribe to a list?
1.5   How do I suspend or resume getting e-mails from the list?
1.6   How do I get the digest format e-mails from the list?
1.7   How do I unsubscribe from the list?
1.8   What if I forgot my password?
1.9   What if I have questions or problems with my subscription?
1.10  What if I don't follow the Guidelines and Netiquette Rules?

2.0    GETTING STARTED ON OUR LISTS
2.1    Understanding Internet Abbreviations Used On Lists.
2.3    When will I start receiving posts? 
2.4    How do I post to the list?
2.5    How do I reply to a specific message?
2.6    Oops!  I did not mean to send that post, can I get it back?

3.0    LIST RULES AND MODERATOR INFORMATION
3.1    Tolerance. 
3.2    Trimming off the Excess From Your Post.
3.3    Quoting Resources and Copying Texts from Sites and Other People.
3.4     Fill In The Subject Line for Posts.
3.5     Formal Surveys, Polls and Interviewing List Members.
3.6     No Debates, Inflammatory or Negative Posts.
3.7     Using All Caps in Posts is Considered Rude.
3.8     No Profanity, Racial Slurs or Anti-Religion Comments.
3.9     Absolutely No Spam or Chain Mail.
3.10   No Unapproved Solicitation Is Permitted on Our Lists.
3.11   Solicitation For or On Behalf of Other Non-Profit Causes or Organizations.
3.12   Do Not Send Attachments.
3.13   Do Not Use Blind Carbon Copies or Send to Multiple Destinations.
3.14   Using List Member Information Is Forbidden.
3.15   Try to Stay On Topic.
3.16   Use of Autoresponders Is Strictly Prohibited.
3.17   Sending Private Emails to Other List Member.
3.18   Moderated Lists/Moderator Responsibilities

4.0   TROUBLESHOOTING
4.1    I subscribed but am not getting any messages.
4.2    How do I switch to a digest format so emails are batched into one big email a day?
4.3    I want to switch back to have single emails (no longer receive digest). 
4.4    I'm getting my mail just fine, but when I post, the server says I'm not a member.
4.5    No one has answered my post, or, I have not seen my post on the list yet.
4.6    I've tried to unsubscribe. Why am I still getting messages?
 

               


1.0 Basic List Information

1.1  Who owns and runs the lists? All lists that are owned by the IOH are administrated by the IOH and all IOH-moderated lists are moderated by the IOH.  In addition to our own lists the IOH may host other lists started by individuals. Non-IOH list administration is still performed by the IOH but moderation on non-IOH owned lists are the responsibility of the actual list owner. Non-IOH lists are identified as such and the IOH reserves the right to deny hosting to any list and terminate hosting privileges of any list for any reason whatsoever. Lists that are not properly moderated or become dormant may be eliminated from IOH list options.

1.2 Who can join and what are my posting privileges?  Anyone can join our lists. Some lists have membership restrictions. See the public list information page for details about individual list restrictions.  Failure to comply with our List Rules and Netiquette may result in moderation of posts or suspension of list posting privileges at the complete discretion of the IOH. Moderation or suspension of privileges resulting from actions on one list applies to all other lists under our domain.  IOH reserves the right to refuse subscription to the Child Chat list for emails or posters of a suspicious nature.  IOH reserves the right to block and posted at any time for any reason whatsoever.

1.3  How can I help offset the operating costs of your lists?  We encourage you to shop our affiliates on our site.  We only allow sponsor advertising we think may be of interest to website visitors.  Or make donation (through our e-store) to help offset the costs associated with maintaining and operating our online support services. You can also help support the IOH by telling your friends about us and shopping in our store.

1.4  How do I subscribe to a list?  Subscribing, unsubscribing, and change list options including suspending mail, change to digest format, and language from your list's public information page.

When you subscribe the serve will send you an email asking you to confirm your subscription.   This way no one can subscribe others who may not wish to be on our lists.  You must reply to this message to become a member. Once you are subscribed you will receive a Welcome Letter from the system with more specific information about your list.

1.5  How do I suspend or resume getting e-mails from the list?  To make changes to your email preferences including, suspending email, to receive digest format, subscribe or unsubscribe, and more visit your list public information page.  Please note you will need your password to change settings. If you do not remember yours, you can ask the system to email you a copy from this site.

1.6  How do I get the digest format e-mails from the list?  A digest email contains all the messages sent to the list each day batched together into one big email (or when the digest reaches a maximum size, whichever happens first).   To make changes to your email preferences including, suspending email, to receive digest format, subscribe or unsubscribe, and more visit your list public information page.  Please note you will need your password to change settings. If you do not remember yours, you can ask the system to email you a copy from this site as well.

1.7  How do I unsubscribe from the list?  To make changes to your email preferences including, suspending email, to receive digest format, subscribe or unsubscribe, and more visit your list's public information page.  Please note you will need your password to change settings. If you do not remember yours, you can ask the system to email you a copy from this site as well.

1.8  What if I forgot my password?  You can get your password emailed to you, or change your email or any other list setting from the lists public information page.

1.9  What if I have questions or problems with my subscription?  Contact the list administrator.  Due to the high volume of email that the IOH receives it may take up to 2 business days to receive a reply.  Send urgent requests to Lahle@isletsofhope.com with the subject marked URGENT.  Unsubscribe, lost password and general questions are not considered urgent.

1.10  What if I don't follow the Guidelines and Netiquette Rules?  Failure to comply with List Rules and Netiquette may result in suspension of posting privileges for up to 30 days or expulsion from the list at the sole discretion of the IOH.  

               


2.0  Getting Started

This section will give you information about getting started on the list. You'll have references for some common abbreviations and information about receiving messages and posting to the list.

2.1   Understanding Internet Abbreviations Used On Lists.  The terms below are a list of the most commonly used abbreviations in Internet communications.  For medical abbreviations commonly seen on diabetes lists go to our GLOSSARY.

D = Diabetes
DH = Dear Husband, Darling Husband
Dx or Dxd = Diagnosed
IMHO = In My Humble Opinion, In My Honest Opinion
IMO = In My Opinion
IRC = Internet Relay Chat
LOL = Laughing Out Loud
MIL = Mother In-law (also FIL, SIL, BIL for the others)
Pumpers = Those who use insulin pumps
ROTFL = Rolling On The Floor Laughing
ROTFLOL = Rolling On The Floor Laughing Out Loud
ROTFLMAO = Rolling On The Floor Laughing My A** Off
SO = Significant Other
YMMV = Your Mileage May Vary

2.3  When will I start receiving posts?   After you subscribe you must also reply to confirmation letter, then you should being receiving posts anywhere between a few minutes to several hours.  If you receive digest posts you will receive messages once daily or when the combined messages in the server reach the maximum size limit for each digest.

2.4  How do I post to the list?  Send a message to nameofyourlistgoeshere-isletsofhope.com@lists.isletsofhope.com or simply read any list email and hit “reply.”  Remember, you are not allowed to email members off-list without first obtaining their permission on-list.  All your posts sent to the list will go to EVERYONE else on the list and will be stored in the archives.  All list archives are private (they will not appear in web searches) but any list member can read them.  Be sure to include a subject line so that others can better decide if they wish to read your post or not.

2.5  Replying to a specific message.  When you reply (rather than draft a new post) to the list be sure to CHANGE THE SUBJECT line to reflect your new subject, especially if you get the digest version which will otherwise simply reply with the digest issue information and people will tend to ignore your posts.  Be polite and trim out old forwards, headers, and footer material.

2.6  Oops!  I did not mean to send that post, can I get it back?  Unfortunately, no.  Once you post to a list it is pretty much permanent and will also be copied into the list archives.  Be sure you really want to send your post before you hit send because there is no turning back!  

             


3.0 List Rules and Function of Moderators

3.1 Tolerance.  When you join an IOH list, please be tolerant.  If someone’s post offends you, or seems to be inflammatory in nature either ignore it or contact the list administrator to report the problem.  The IOH lists are not a place for heated debates and we expect you to be friendly and respectful of other people’s posts.  Since many people prefer an upbeat place to find ideas, support and new friends sometimes continually negative posters may not integrate well with others on some of our lists.  But we ALL need a place to be negative about diabetes (not about others) if we want so we offer the Diabetes Stinks list where you can pretty much say all you want, use all the language you want as long as the anger is directed at diabetes and not at other people,  institutions, or products.

3.2  Trimming off the Excess From Your Posts. When replying to messages, remove ALL the text from messages that is not relevant to your answer. This includes headers and footers from the original message.   This is especially important for those who get the digest version.  If you do not trim off excess from the digest version you will send back very large emails to this list if you simply hit reply and re-forward all the attached information.

3.3  Quoting Resources and Copying Texts From Sites and Other People.  Never quote from a private email unless you have the author's written permission to do so. Typically, reposts or quotes are not permitted unless citing a published medical reference or site resource.   Use caution when cutting and pasting from other sources as it may be copyrighted material.

3.4  Fill In The Subject Line for Posts.  Subject headers should contain a good description of what you are writing about.  This helps others quickly decide whether or not they want to read a post sent to the list since some lists have a high volume of posting activity.

3.5  Formal Surveys, Polls and Interviewing List Members.  If you are interested in doing a formal survey or interviewing other list members, you need to have PRIOR approval from the list administrator.   Please contact the list administrator and request posting guidelines for formal polls and surveys.  Casual queries to other lists members (i.e., does anyone else use Lantus?) is perfectly acceptable.

3.6  No Debates, Inflammatory or Negative Posts.   Personal attacks (flames) are not permitted on our lists and will result in suspension of posting privileges or expulsion from our lists.  Please do not debate other member's viewpoints; respect that we all think and feel differently, either do not respond at all, or reply in a positive, supportive manner.  Report all offensive posts to the list administrator to handle. 

To avoid heated discussions the IOH has two lists that afford more freedom of communication.  You can vent on the Diabetes Stinks list (see guidelines on the list’s public information page), and you may talk openly about matters of faith on our Faith list.  (If you wish to discuss the occult, including Wicca, please contact the list administrator.  Due to lack of expressed interest no list exists for these discussions.)

3.7  Using All Caps in Posts is Considered Rude.  Typing in all caps is considered shouting on the Internet and generally considered rude.   Sometimes using all caps is appropriate (i.e., I HATE diabetes).  For entire posts it is never appropriate to use all caps.

3.8  No Profanity, Racial Slurs or Anti-Religion Comments.   Absolutely no profanity is permitted on our lists; this includes expletives as well as racial slurs or anti-religion comments.  The only exception is our Diabetes Stinks list where you may insinuate expletives by using graphics &*%# to emphasize your frustration.  See the lists public information page for more details.

3.9  Absolutely No Spam or Chain Mail.  You may not forward non-relevant posts of any kind to our lists.  This includes jokes, spam (unsolicited, frivolous mail), chain mail, or other mass-forward mail.  The exception is items specifically relevant to diabetes (or the particular list topic).  Please remember, what is funny to one person might be offensive to another.

3.10  No Unapproved Solicitation Is Permitted on Our Lists.  While it is fine to share your own personal feelings about a product or organization or ask others questions about preferred types of insulin, meter reliability, recommended pumps, etc. you may not use the IOH lists as a selling platform for yourself, or on behalf of anyone else, or any other organization.  Specifically, you may not market your own products, those of any other company directly, or indirectly by testimonial posts for sales purposes, attaching ads as headers, footers or signatures, or offer website links directing people to your product/service.  Anyone caught using our lists for unapproved marketing or solicitation will be permanently banned.

Advertising sponsorships may be permitted on our lists.  If you have a diabetes-related service, product, or announcement that may be of interest to our list members please contact our marketing department at Marketing@isletsofhope.com.  Absolutely no pop-up advertising is permitted on our lists and the IOH reserves the right to refuse to advertise any product, service, or announcement for any reason whatsoever.

Please report problem ads (especially from those who may join our lists appearing to be list members but only joined to try and sell you things) to the list administrator.

3.11  Solicitation For or On Behalf of Other Non-Profit Causes or Organizations.  The IOH allows this form of solicitation when approved in advance.  We want to encourage others to donate and donate generously if it benefits the diabetes community – even if it means the donations go outside the IOH.  To ask for an IOH approval of a solicitation contact Marketing@isletsofhope.com.

When IOH approves the intended solicitation an announcement will be posted to lists in the form of a header or a footer free of charge (for non-profit organizations only) for a period of time as the IOH deems appropriate.  Posts may not be sent directly to the list from list members or from other organizations asking for solicitations.

3.12  Do Not Send Attachments.  Our list server will not accept attachments.  This aids in keeping viruses and unwanted material from entering through our lists.  Posts will hang in the system if they have attachments.  This means your post will have to be manually put through to the list or rejected by the list administrator.  This will cause a delay in the processing of your post to the list.

3.13  Do Not Use Blind Carbon Copies or Send to Multiple Destinations.  Our list server will not accept posts with blind carbon copies or multiple destinations.  This aids in keeping viruses and unwanted material and mass mailings from entering through our lists.  Posts will hang in the system if they have blind carbon copies or multiple destinations.  This means your post will have to be manually put through to the list or rejected by the list administrator.  This will cause a delay in the processing of your post to the list.  If you wish to cross-post to other lists do not do it by copying more than one list, you will need to post individually to each list.

3.14  Using List Member Information Is Forbidden. Using member information for any purpose is strictly forbidden. No compiling, selling or other use of email addresses of any list members for personnel or professional use will be tolerated.

3.15  Try to Stay On Topic.   Our lists try to tailor to individual interests as much as possible.  Try to stick to the main topic of the list.  If you wish to talk about faith, please do this on the faith list where you can talk freely about your beliefs and personal relationship with God.  (If you wish to discuss the occult including Wicca, there currently is no list available due to unexpressed interest to date.)  The faith list is not intended to be a debate forum or platform to attempt to convert others, merely a universal place to share your personal relationship with God.  Please contact the list administrator if you have any questions or problems with other list members. 

3.16  Use of Autoresponders Is Strictly Prohibited.  If you go out of the office, or are not accepting email you must suspend your email service from the list.  This can be done via the public information page for your list and selecting “No Mail.”  You will receive no mail therefore your autoresponder will not reply to the list.  You can check the archives later to see what you may have missed.  If you forget, or do not suspend your mail and the list receives an autoresponse-generated email your account will be suspended by the list administrator.  The list administrator will notify you once and it is your responsibility to enter the public information page and turn your mail back on once you have turned off your autoresponder.  Please report autoresponse emails sent to lists (since they are not moderated) to the list administrator.

3.17 Sending Private Emails to Other List Member.  Private emails may NOT be sent to other members on IOH lists unless they invite others to post them off-list (privately).   When a member queries for information via formal survey or poll they must ask for a private response so as not to bog down the list with multiple replies.  If anyone requests that you stop posting them privately you must respect their wishes. If this rule is not followed, the offending member will lose all posting to all lists the IOH hosts.

Private emails may never be quoted on any list without the sender’s prior written consent, the exception being a published article, medical reference or resource site.

3.18  Moderated Lists/Moderator Responsibilities.  Very few of our lists are moderated.  The Eating Disorders list (moderator participates on list) and Child Chat list (fully moderated, no posts go through without manual approval) are moderated.  The function of a list moderator is to ensure flame wars do not break out and that inappropriate posts do not get through.  A moderator guides the list and is not to be used for medical or psychiatric counsel. List members are the eyes and ears of IOH lists but you can always report problems to the list administrator. 

               


4.0 Troubleshooting

If you cannot resolve your list problem, or don’t find an answer to your question here, contact the list administrator.

4.1  I subscribed but am not getting any messages.  Make sure that you replied to the confirmation letter sent to the email address you subscribed to the list under. You must reply to the confirmation letter in order to become a list member. You should also double check your email address. Sometimes the address in the email software does not match the email address you entered and you will not get subscribed.  It might also be that no one has posted to the list since you subscribed.  Send a letter to the list introducing yourself to see if you receive it.  You can contact the list administrator for help if none of these things work.

4.2  How do I switch to a digest format so emails are batched into one big email a day?  When you subscribe to a list the default setting is for you to receive individual emails as they post to the list, they will be forwarded to you.  But you can also choose to receive daily emails batched together in “digest” form.  If you get digest version you will have to change your settings. You can control a host of list settings, including subscribing, unsubscribing and suspending mail, from your list's public information page.

4.3  I want to switch back to have single emails (no longer receive digest).  When you subscribe to a list the default will always set you to receive individual emails.  You can control all your list settings, including subscribing, unsubscribing and suspending mail, as well as selecting digest versus single emails from your list's public information page.

4.4  I'm getting my mail just fine, but when I try to post, the server says I'm not a member.  Sometimes your Internet Service Provider (ISP) will make a slight change to your e-mail address (i.e., from Person@server.com to Person@123.server.com).  Your ISP will still forward mail to the new ISP email address but the IOH server is not recognizing the change.  You need to unsubscribe from the old name and resubscribe with the new ISP address.  If you have any trouble doing this contact the list administrator.  The list administrator will not send your posts hung-up in the server when an ISP address changes or if you post under a screen name other than the one you subscribed under.

4.5  No one has answered my post, or, I have not seen my post on the list yet.  Unless you have selected the “not me-too” option you will see a copy of your own message when you post to the list.  If you see your post but have not received a response it might be that no one knew the answer to your questions, others have not read your post, or have not received their digest version for the day yet.  Sometimes, if the same question has been asked many times others may not respond.  It is okay to politely repost your question to the list or search the archives for answers to past similar questions.  The archives can be entered through the public information page for your list.

If you have not seen your own post go to the public list information page for your list and check to make sure you are not set on “not me-too.”  This setting will allow you to receive all posts to the list except your own.  For several reasons your post may not have gone through to the list.  This includes posts with requests for administrative help (like “how do I unsubscribe,” you are not a list member, you are posting from a screen name other than the one you subscribed to the list under, you are also carbon copying other lists or email addresses (the server rejects mass mailings of any kind), or your ISP has changed your screen name.  When a post is hung up in the server both the list administrator and poster receive an automated notice.  The list administrator manually goes into the system to either approve the post (send it to the list) or reject it (you will be given the reason why).  Since this process is performed manually, it can take up to 48 hours for the list administrator to approve/reject the post.

4.6   I've tried to unsubscribe. Why am I still getting messages?  You may have been subscribed under two different aliases, many people do this.  Also, if you have problems contact the list administrator.  If messages (true with digest) were already in queue to be sent prior to unsubscribing you may still get these messages.  This should not happen for more than 24 hours, if it does, contact the list administrator.

                 

 

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