Islets of Hope diabetes studies and research links

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Life with Diabetes   Sheppard/Jones
Life With Diabetes:
 "Life with Diabetes, is adorable, simple and sweet, yet addresses so many questions children have about type 1 diabetes." Janette Kirkham RN, CDE  


Links to information about clinical trials and studies

Want to know more about the profile of centers conducting clinical endocrine-related studies and trials?  Center Watch: Endocrinology Profiles

Frequently asked questions about clinical trials (from NIH)

Science Daily features a section on clinical trial management throughout the world.


Diabetes Fiction for Children

Why me?   Deborah Kent
Why Me?  Living With A Secret
:  Cassie Mullins is fed up with her parents, who think she can't be trusted to manage her diabetes. Just because she cheated on her diet and landed in the hospital. Just because she wants to be a normal kid. Only Aunt Liz seems to understand, and she urges Cassie to take a job as counselor at a camp for diabetic children. Camp Caribou seems like the perfect solution. Cassie's free and her parents think she's safe. There's only one problem: she's the only counselor who has type 1 diabetes -- and she has decided to keep it a secret.

It's not easy to conceal the truth. Cassie can't even tell Jason, the cute counselor who has become a special friend. Her world falls apart when her parents show up unexpectedly and reveal her secret. Cassie's furious and ashamed. And Jason feels betrayed that she hadn't told him. Suddenly, nothing seems to matter. Why be careful when nobody trusts her anyway?


Disclaimer

Islets of Hope does not review, endorse, or recommend study participation in any trial or program.  This is a decision that you need to make in conjunction with your personal physician.  Islets of Hope bears no responsibility or liability for persons using this information, or participating in any study found through Islets of Hope's website.


Personal story of a woman with type 1 diabetes who underwent a pancreas and kidney transplant

Showdown with Diabetes Deb Butterfield   Deb Butterfield
Showdown With Diabetes:
Butterfield was diagnosed with type 1 diabetes at age 10; at age 34 she received a successful pancreas/kidney transplant, and was cured of the disease. Five years later, Butterfield takes only small daily oral doses of immunosuppressive drugs to prevent organ rejection, and she is the director of the Insulin-Free World Foundation, devoted to finding cures for diabetes. Here she first chronicles her own struggle with the disease and then offers similarly affected readers a thorough, up-to-date guide to current research and future possibilities for their own cures.

Butterfield makes crystal clear from the outset that the burden of having diabetes is "grossly underestimated'' by medical professionals and the general public. Butterfield rejects out of hand the standard establishment line (see Touchette, below) that careful disease management leads to healthy living. Despite her adhering religiously to her treatment regimen, ``within a four-year period diabetes killed the nerves below my knees, caused bleeding in the back of my eyes, the amputation of part of a toe, a skin graft''and that was before the kidney failure and heart attack that finally led to her transplant operation. As Butterfield points out, the focus of diabetes research has been management; her mission is to refocus onto finding cures. This is a forceful, eloquent, engrossing, and ultimately convincing argument.

diabetes news headlines and research                                                       
                                                                                                                                            main Research page
Diabetes research, clinical trials, studies
Research information links about diabetes type 1, type 2, prediabetes and gestational diabetes

The Internet if for sharing ... and for caring.  If you copy our list of links for your own site, we'd be grateful if you would add a link to our site as well. Your site's support and mention of www.IsletsofHope.com will help many with diabetes.  We donate 100% of the profits from our website to nonprofit diabetes organizations that purchase insulin, diabetes medications, and supplies for others in need.


Mini Site Index

Diabetes Clinical Trials, Research, and Study Information Links
-- United States
-- Canada
-- International

Unless otherwise stated, all links below will contain available study and research information related to type 1 and type 2 diabetes, or complications associated with diabetes.

United States

American Diabetes Association - Basic, general information about clinical trials, to see more specific information about trials visit their Clinical Trials News webpage.

Center Watch - Diabetes Clinical Trials Listing Service (listed by state and medical focus)

Clinical Research Investigators Registry (Diabetes Investigator) - Lists information about trials by state and city.

ClinicalTrials.com (offered by Pharmaceutical Research Plus, Inc.) Offers extensive information about clinical trials, current trial locator information.  This site is a recruitment service for studies in the United States and Canada.

City of Hope - Search for medical studies including those for diabetes.  Offers patients the ability to locate studies based upon disease, and stage of trial, as well as purpose/focus.  City of Hope Diabetes homepage.

Diabetes Research Institute - Current clinical trials for islet transplantation program information.  The goal of islet transplantation is to give back only the cells necessary for blood sugar control. Instead of major surgery, the procedure is performed in a radiology suite, and takes approximately 20 – 30 minutes. 

DiabetesTrialNet.org - TrialNet is a network of 18 Clinical Centers working in cooperation with screening sites throughout the United States, Canada, Finland, United Kingdom, Italy, Germany, Australia, and New Zealand. This network is dedicated to the study, prevention, and early treatment of type 1 diabetes. TrialNet is supported by the United States National Institutes of Health and Department of Health & Human Services, Juvenile Diabetes Research Foundation International, and the American Diabetes Association.

DukeHealth.org - List clinical trials and studies for many medical disorders, including diabetes trials.

Immune Tolerance Network (ITN) - Solicits, develops, and implements clinical trials and tolerance assay studies in: islet cell, kidney and liver transplantation; autoimmune diseases (see current clinical trials in new onset type 1 diabetes;  and allergies and asthma.

Joselin Diabetes Center - List of current studies for type 1 and type 2 diabetes conducted by Joselin centers nationwide.  Clinical trials - University of Maryland

Juvenile Diabetes Research Foundation (JDRF) - Current list of diabetes clinical trials.  The JDRF also sponsors  the Genetics of Kidneys in Diabetes Study (GoKinD Study).  Purpose: To better understand how the genes contribute to the development of diabetic kidney disease.  Email: Gokindinfo@gokind.org.

National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), part of the NIH organization , lists studies that they sponsor.   NIDDK-Funded Clinical Research, Search for Clinical Trials, Policies Related to Clinical Research.

Massachutes General Hospital - Diabetes division - lists studies for both type 1 and type 2 diabetes.

Mexican American Trial of Community Health Workers (posted by Rush University Medical Center).  En Español
Diabetes is a growing problem, and Hispanics, particularly Mexican Americans, are especially hard hit by this illness. As many as 24 percent of Mexican Americans in the United States between the ages of 45 and 74 have diabetes. Mexican Americans are more likely to die and suffer from diabetes complications, such as kidney failure, heart disease, and blindness than non-Hispanic whites. Researchers at Rush are offering a new program to study ways to help Mexican-American with diabetes.

National Institutes of Health (NIH) - Offers a comprehensive clinical trial and study tracking service. The site lists current information about federally and privately supported clinical research in human volunteers. Includes information about a trial's purpose, who may participate, locations, and phone numbers for more details. The information provided on ClinicalTrials.gov should be used in conjunction with advice from health care professionals. Before searching, you may want to learn more (NIH FAQ) about clinical trials.

NewOnsetDiabetes.org - Trials and studies for those newly diagnosed with type 1 diabetes. (Sponsored by the Immune Tolerance Network [ITN]).

Rush University Medical Center - Diabetes clinical trial information.  Call (312) 942-5498 to inquire about available studies for which you may be eligible.

Scripps.org - Diabetes Trials - List trials being conducted by the Whittier Institute for Diabetes that are currently enrolling participants.   Contact the research study coordinator at 858-626-5666, or email leslie.katherine@scrippshealth.org.

University of Kentucy - The Metabolic Research Group (MRG) conducts several new trials each year on diabetes, obesity, and high cholesterol. MRG is currently recruiting for research participants to enroll in these studies.


Canada

Canadian Diabetes Association - The Canadian Diabetes Association is pleased to facilitate an opportunity for Association members and external agencies to post information on clinical trials and/or to solicit participants or partners in a clinical trial study activity.

ClinicalTrials.com (offered by Pharmaceutical Research Plus, Inc.) Offers extensive information about clinical trials, current trial locator information.  This site is a recruitment service for studies in the United States and Canada.

DiabetesTrialNet.org - TrialNet is a network of 18 Clinical Centers working in cooperation with screening sites throughout the United States, Canada, Finland, United Kingdom, Italy, Germany, Australia, and New Zealand. This network is dedicated to the study, prevention, and early treatment of type 1 diabetes. TrialNet is supported by the United States National Institutes of Health and Department of Health & Human Services, Juvenile Diabetes Research Foundation International, and the American Diabetes Association.  


International Clinical Trial Information Links

DiabetesTrialNet.org - TrialNet is a network of 18 Clinical Centers working in cooperation with screening sites throughout the United States, Canada, Finland, United Kingdom, Italy, Germany, Australia, and New Zealand. This network is dedicated to the study, prevention, and early treatment of type 1 diabetes. TrialNet is supported by the United States National Institutes of Health and Department of Health & Human Services, Juvenile Diabetes Research Foundation International, and the American Diabetes Association.

Australia

Diabetes Research Centre (Melbourne) - Lists clincial trials and studies being conducted by the Diabetes Research Centre.  They have links for follow the events of ongoing studies (closed to new participants) including the BabyDiab study.

NHMRC Clinical Trials Centre (University of Sidney website) - The CTC, a medical research organisation, runs large multicentre clinical trials, takes part in trials of national and international collaborative trial groups and contributes expertise to trials run by others.  Some of the site is still being constructed, and trials listed are limited. But this may be a site to watch as it continues to grow.

Hungary

Budapest, Hungary; Diagnostic Units Hungary - Vizsgálat 2 típusú cukorbetegségben szenvedo betegek számára, akik diétával, vagy alacsony dózisú, tablettás készítménnyel kezeltek

Puerto Rico

Ponce, Puerto Rico; Ponce School of Medicine - Are you Diabetic and Suffer from Pain in Your Legs or Feet?

United Kingdom

Omni.ac.uk - Information about organizations with links or conducting clinical trials in diabetes.

Outfield Surgery - The Clinical Research Unit at Oldfield Surgery has a wide range of experience, skills and resources. Telephone 01225-423250 or e-mail Samantha.Cross@gp-L81039.nhs.uk.

UK prospective diabetes study - post-study monitoring (PSM)

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Page Updated 10/06/2006