Islets of Hope for persons with diabetes

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Sources of information for Islets of Hope's Brochure, revision date 04/2006

[1] 1 in every 600 children in the US has type 1 diabetes. Children's Hospital, Wisconsin

[2]  American Diabetes Association, Diabetes Statistics

[3] Each year over 13,000 children are diagnosed with diabetes in the U.S.  That’s 35 children each and every day. (JDRF)

[4] About 176,500 people aged 20 years or younger have diabetes. This group represents 0.22 percent of all people in this age group.  About one in every 400 to 600 children and adolescents has type 1 diabetes (NIH)

(5) Diabetes Overview Fact Sheet, Virginia.gov

[6]  Long-Term Trends in Childhood Diabetes Mortality: 1968–1998; John H. DiLiberti, MD, PHD and Rodney A. Lorenz, MD;  Department of Pediatrics, University of Illinois College of Medicine, Peoria, Illinois

[7] DKA Preventable Deaths

[8] Hyperglycemia and DKA; Kids Health for Parents

[9]  Mortality in the Diabetic Population, Center for Disease Control

[10] Fact Sheets:  General Diabetes; JDRF

[11] Statistics About Diabetes; WrongDiagnosis.com

[12]   Covering the Uninsured; Harvard Magazine

[13]  Diabetes Type 2 - A Review; July 14, 2005, EMedicine.com; Scott R Votey, MD, Assistant Dean for Graduate Medical Education, Associate Professor of Medicine/Emergency Medicine, UCLA School of Medicine, UCLA Medical Center

[14]  OneTouch Press Release 3/5 do not manage their blood glucose

[15]  Statement of L. Hunger Limbaugh, Chairman, National Advocacy Committee, American Diabetes Association; Statement on HR 2355, Health Care Choice Act, June 2005

[16]  One third of Children born in the US are at risk for diabetes; By Joanne Laurier
19 June 2003, WSWS,org

[17]  Links to insulin pump studies about babies, children, and teens; IPump.org

[18]  Excerpts from 2005 Shareholders Meeting, 2005; Medtronic

[19] National Diabetes Statistics (USA); NIDDK

[20]  Latest Diabetes Statistics; GlucoMenu

[21]  Manitoba Pump Bill; Diabetes Advocacy.com

[22]  Insulin Pumps; PennState Milton S. Hershey Medical Center

[23]  Council Cost Estimates, HB 656; Pennsylvania Health Care Cost Containment Council

[24]  National Trends: Mortality Due to DKA; Center for Disease Control

[25]  Based on prices check  comparisons (03/28/06) from:
 
Drugstore.com; Von's (Safeway) Pharmacies, Costco Pharmacies, and Wal-Mart (Upland, CA)

  Islets of Hope for Persons with Diabetes
     Information About Islets of Hope

Sources of brochure information

Islets of Hope & IPump.org, Inc. Brochure
published 04/2006

To request a brochure(s), e-mail Info@isletsofhope.com, or send a self-addressed, stamped envelope to:
Islets of Hope, 2323 Meadowglen Way, Upland, CA  91784


Front Cover

IPump.org, Inc.
Diabetes Education, Advocacy & Support
Sponsored by Islets of Hope

Elizabeth, child with type 1 diabetes

Of the more than 123,00 (note since brochure was published this figure has been increased by the National Institutes of Health to about 176,500) children in the U.S. with type 1 diabetes[1][2][3][4] all need insulin to live,[5] including Elizabeth (pictured above), diagnosed at age 4.

Over the past 14 years there has been no decline in diabetes-related deaths in children, despite improved insulin therapy and health technology.[6][9]  Most childhood deaths from diabetes could be prevented by taking simple steps like educating parents, testing blood sugar more often, and when appropriate, insulin pump therapy.[7][8])

But with annual, out-of-pocket costs for caring for a child with diabetes now exceeding $23,000 educating parents is not enough.[5][10][12][21][22][23][24][25].

Islets of Hope helps educate people about living with diabetes and how to care for themselves, and IPump.org, Inc. helps get them the tools they need to do it.

Inside of brochure

Diabetes Kills. In the U.S. someone dies prematurely from diabetes every 3 minutes.[10] 2.9 million people world-wide die of diabetes each year.[9][10] Diabetes is the 4th leading cause of death among Hispanic, African American, and Native American women in the U.S. and diabetes is now ranked the 6th cause of all deaths in the U.S.[9][10]

Every hour, 90 people are newly diagnosed with diabetes.[10][11] At least 25% of all people with diabetes cannot afford testing supplies, medication, or insulin.[12][13] Those that cannot pay for their supplies cannot test their blood sugar.[14][15]  If they don't test their blood sugar, they cannot manage diabetes. If they don't manage diabetes - or fail to take insulin - they will die prematurely. Of the preventable, premature deaths from diabetes each year, approximately 5% are children under the age of 14.[16]

Multifaceted Support for Diabetes Patients

From the team effort between www.IPump.org and www.IsletsofHope.com

Diabetes Education

The first step towards managing diabetes begins with education.

Islets of Hope (IOH) hosts an extensive online website (www.isletsofhope.com) with information about diabetes prevention, diagnosis, treatment, management, and daily coping skills. IOH offers free publications for patients, schools, and diabetes caregivers.

With more than 10,000 links to studies, research, treatment facilities, resources, and information, IOH is a great place to begin to learn about diabetes.

But we don't stop there.

Diabetes Patient and Consumer Advocacy

IOH rates products, service providers, lists diabetes-friendly schools, and reports on snake oil companies boasting “cures” for diabetes (there is no cure).

IOH answers legal questions about diabetes discrimination and insurance problems and features a state-by-state guide to laws and policies affecting persons with diabetes.

Patient Assistance

What good is telling a patient what they should do if they cannot afford to do it? IOH lists assistance programs including federal, state, private, and charitable resources, as well as insurance alternatives, clinical trials, prescription drug programs -- even where to buy the cheapest diabetes supplies.

IPump.org, Inc. has assistance programs for qualifying persons to help with the cost of diabetes medications and supplies. IPump.org, Inc. also helps patients obtain insulin pumps and provides free glucose meters to persons in need.

Community and Family Support

IOH hosts more than 60 unique online support groups for persons with diabetes - all free.

The IOH website features family forums, information about diabetes camps, lists diabetes-friendly schools, and even has a special Single Parents section.

In order to help members of the diabetes community succeed, IOH offers at-cost advertising to business owners living with diabetes. And, other nonprofit diabetes organizations and support groups can advertise for free on www.IsletsofHope.com.

Right-hand side bar (inside of brochure)

Insulin pumps have been proven to be safe, effective tools for preventing both hypoglycemia and hyperglycemia in children - the major causes of death from diabetes in children. [17]

But too few children are on insulin pumps and the number of children dying from diabetes has not decreased over the past 14 years, despite improvements in medical technology and diabetes care practices.[6][9]

More than 55 million people need insulin to live[19][20] but only about 450,000 people in the world use an insulin pump which can cost about $6,000.[21][22][23] Pump supplies can cost $400 or more each month.[22][23]

Almost 1,800 people die each year in the U.S. from diabetic ketoacidosis.[24]  Many deaths could be prevented by proper use of a pump and testing blood sugars more often, but ...

test strips cost .70 to $1 each. Testing 5 times daily can cost more than $1,800 a year. For a patient on intensive insulin therapy who tests 8-10 times per day the cost can reach over $3,500 per year. [21][22][23][25]

Back Panel

The chart listing average out-of-pocket costs was compiled from information found in footnotes [12][21][22][23][24][25].

 

IPump.org, Inc. (Insulin Pumps for Underinsured Mellitus Patients) is a 501(c)(3) Nonprofit California Public Charity

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Page Updated 05/16/2006